Lysosomal Disorder Guidelines

These guidelines are agreed by representatives of the NHSE Specialised Services for Lysosomal Storage Disorders (formerly the LSD Expert Advisory Group). They are independent of the BIMDG emergency guidelines committee and are hosted on the BIMDG website for information only.

Please contact the lead author(s) of the guideline directly if you have any queries or comments.

Lysosomal Disorders (IMD) - Guidelines and Documents
Infusion reactions

Nursing Staff - Protocol for managing Enzyme Replacement Infusion Reactions outside of Hospital
November 2020

Patient Carers - Advice for patients receiving Enzyme Replacement Therapies (ERT) outside of Hospital
November 2020