Privacy Policy
BIMDG Privacy Policy

Who we are

The British Inherited Metabolic Diseases Group (BIMDG) is a charitable incorporated organisation (CIO) with the following objectives:

1. To relieve, for the benefit of the public, persons suffering from inherited metabolic disease by advancing the education of professionals involved in their diagnosis, care and treatment. 

2. To promote, for the benefit of the public, research into the treatment of inherited metabolic disease.

The BIMDG has been entered onto the Register of Charities with the Registered Charity Number 1184024

What we collect

The types of personal information we collect may include your title, first name(s), last name(s), home and / or work contact details (telephone, street address, email address), occupation and your mailing address.

We may also collect information relating to your employment, including a category of salary band.
In applications for some aspects of membership (such as Scientific Scholarships) we ask you to identify a referee and to provide contact information for them. 

We may share your personal information with GDPR compliant third parties when legally instructed or where we have a justifiable legitimate interest (such as events you have signed up for or auditing).  We will not provide your personal information to third parties for any other purpose. 

How we handle your personal information

The BIMDG respects the privacy of its members, customers, and website users, and aims to act consistently within applicable legislation.

Generally, the BIMDG collects personal information directly from you or via our website forms or when you interact directly with us in other ways. For example, we collect personal information when you:

- Deal with us in person, by telephone, letter, or email
- Fill out and submit an Application for Membership
- Submit any other information in connection with your application for membership
- Make an enquiry via a web form
- Apply for a bursary or grant
- Register to attend an event
- Respond to a membership survey
Why we collect information

We collect personal data to administer our activities, products, services or grants and bursaries.

Maintaining the accuracy of data

Personal data can be corrected or updated by contacting the BIMDG by email or via the Contact form of the website.

Payment and bank details

We keep records of subscription payments.  We do not take or hold bank details.  We may engage with GDPR compliant third parties in arranging symposiums and other events.

Use and disclosure

The BIMDG's policy is not to disclose any personal information that we hold on you to any unrelated third party, except where you have given your express consent for us to do so or where required by law. 

Arrangements are occasionally made with suppliers of goods and services (such as other scientific societies for their mailings to be sent to members). All material is carefully vetted, and the mailing list is never released to third parties. 

The BIMDG may use your email address for the purpose of notifying you about activities of the BIMDG (e.g. relevant meetings, guidelines, surveys etc). 

Personal information will be used only for the purpose stated at the point of collection (such as the processing of grant applications) and such information will be held for as long as necessary to fulfil the stated purpose and any legal obligations. 

The BIMDG (or its committee members/representatives) may, from time to time, email you with additional information considered to be relevant to your professional/scientific interests.


Information that you supply to the BIMDG is held securely and strict security procedures are followed to prevent unauthorised access or use.

Access to personal information and correction of information

If the information we hold about you is inaccurate, incomplete, or outdated, please inform us so that we can correct it.

If you no longer wish to receive information from us, then please let us know by contacting the chair, secretary, or treasurer or by using the contact form on the website.

You can seek access to the personal information we hold about you, by contacting us. You should include your name, address, and telephone number. In general, there will be no charge for this information, but The British Inherited Metabolic Diseases Group reserves the right to charge a reasonable fee in response to an access request.

How to contact us

Contact the chair, secretary, or treasurer via contact details on the website or use the contact form on the website.