BIMDG

TEMPLE

 

 

 

Tools Enabling Metabolic Parents LEarning

TEMPLE (Tools Enabling Metabolic Parents LEarning) are a set of teaching slides and booklets that provide essential information about different inherited metabolic disorders that require special diets as part of their management. These teaching tools are aimed at parents who may have an infant or child that has been recently diagnosed with a disorder, but they are also useful when teaching children, extended family members, child minders, nursery workers and school team.

They are not designed to replace dietary information that may be given by a dietitian in clinic.

They have been developed by a team of experienced clinical and research metabolic dietitians from the UK who are members of the British Inherited Metabolic Disease Group (BIMDG).

The team are Rachel Skeath, Karen van Wyk, Pat Portnoi and Anita MacDonald. The group is facilitated by Heidi Chan from Nutricia.

Each module produced is reviewed by a consultant clinician who is a member of the BIMDG.

(N.B. These teaching tools are a modified version of the original TEMPLE information package designed by Dr's Wendel and Burgard from Heidelberg, Germany)

Please note:
to view TEMPLE presentations as intended (with animation), please download and SAVE the PDF file to users own computer. Then open the downloaded file from your computer.

TEMPLE Guides

Arginase deficiency
Information for families following a new diagnosis (Version 2, November 2020)

Argininosuccinic aciduria
Information for families following a new diagnosis (Version 2, September 2020)

CACT (Carnitine Acylcarnitine Translocase Deficiency)
Information for families (Version 3 - April 2020)

Carnitine Palmitoyl Transferase 1 Deficiency
Information for families following a new diagnosis

Carnitine Palmitoyl Transferase II Deficiency
Information for families following a new diagnosis (Version 3 April 2020)

Citrullinaemia
It is an inherited metabolic condition (Version 2, September 2020)

GA1 (glutaric aciduria type 1)
Information for families following a positive newborn screening (Version 3, October 2020)

Galactosaemia
Information for families (Version 2 May 2020)

HCU (Homocystinuria)
Information for families (Version 3 April 2020)

IVA (Isovaleric Acidaemia)
Information for families following a positive newborn screening (Version 3, September 2020)

LCHAD Deficiency
Information for families following a new diagnosis (Version 3, September 2020)

MCADD (medium chain acyl-CoA dehydrogenase deficiency)
Information for families following a positive newborn screening (Version 3, September 2020)

MMA (Methyl Malonic Acidaemia)
Information for families (Version 3 April 2020)

MSUD (Maple Syrup Urine Disease)
Information for families (Version 3 April 2020)

OTC (Ornithine transcarbamylase deficiency)
Information for families following a new diagnosis (Version 2, September 2020)

PKU (Phenylketonuria)
Information for families following a new diagnosis (Version 3 April 2020)

Propionic Acidaemia (PA)
Information for families (Version 3 April 2020)

Tyrosinaemia Type 1
Information for families (Version 3 Nov 2020)

Tyrosinaemia Type 2
Information for families following a new diagnosis (Version 3 Nov 2020)

VLCADD (very long chain acyl-CoA dehydrogenase deficiency)
Information for families following a new diagnosis (Version 2, September 2020)