These guidance documents have been developed by representatives of the NHSE Highly Specialised Services for Lysosomal Storage Disorders (formerly the LSD Expert Advisory Group), in collaboration with patient organisations, coordinated by the Patient Professional Partnership Network (PPPN) They are independent of the BIMDG emergency guidelines committee and are hosted on the BIMDG website for information only.
Please contact the lead author(s) of the guideline directly if you have any queries or comments.